Aden Group teams up to raise funds for rare disease research in annual event

Aden Group returns to charity tournament supporting medical research and families affected by the rare disease EB.





Every autumn for the past five years, employees of Aden Group have been lacing up their boots, putting in long practice hours and taking to the pitch at the annual Butterfly Cup charity football tournament. The event raises funds for the charitable organization DEBRA, which provides resources to support research, training and families affected by epidemolysis bullosa (EB).

This year, we were proud to field a truly Group-wide team, with players from Akila, NXpark, Aden Energies and Aden Services all wearing the orange jersey for Aden and a good cause. We didn’t take home the trophy this year, but more importantly, the event was a great chance for players from Aden and other international companies, families and friends to meet outside of office hours in support of an impactful cause.

Supporting families, training and research into EB

Epidemolysis bullosa (EB) stems from a rare genetic mutation which causes lifelong dermatological problems for sufferers, and in severe cases can lead to early death. Although the gene responsible for EB has been identified, there is currently no cure for the disease, whose symptoms are blistering of the skin, extreme sensitivity, and visible patches on the skin (the reason children with EB are sometimes known as “butterfly kids”).

Each year, proceeds from the event and an Aden donation go towards supporting the research into treatments and a cure; training for medical professionals; and resources for families with affected children.

Making an impact beyond the Butterfly Cup

This event is just one of many initiatives Aden Group undertakes each year in support of charitable causes. In 2023, Aden employees independently and collectively contributed time and resources to many important causes, including raising funds to for replanting in areas hard-hit by deforestation (The Million Tree Project), support to special-needs education institutions, in-company programs to encourage volunteering, and building robust community investment and local purchasing policies at our remote camp projects, which stretch from Mongolia to Indonesia to West Africa.